tag:blogger.com,1999:blog-5670993098391563897.post8658341880692335026..comments2024-01-16T11:29:15.032-05:00Comments on Three Gentlemen and a Lady: My Breastfeeding JourneyChristinehttp://www.blogger.com/profile/04492902431935577086noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-5670993098391563897.post-70804899288408044362014-04-30T06:15:54.560-04:002014-04-30T06:15:54.560-04:00This comment has been removed by a blog administrator.Allanhttps://www.blogger.com/profile/04414023777592108747noreply@blogger.comtag:blogger.com,1999:blog-5670993098391563897.post-67468234452606095032014-03-30T19:17:17.786-04:002014-03-30T19:17:17.786-04:00this just makes me mad because i KNOW something is...this just makes me mad because i KNOW something is wrong and i cant believe no one believes me. <br />i had no knowledge of this when my son was a baby, i just know he had a really hard time and though maybe i was just stubborn enough to just keep breastfeeding even if it was hard, im sure now it was from a tie. his lip is so bad it goes all the way back to behind his teeth. he is 7 and im sure we will have to have it cut. my sister had hers cut when she was an older kid too, so its no surprise, but im so frustrated no one knew.<br /><br />with my daughter (shes 9 months) i KNEW something was wrong, and i was SURE she was tied, and no one listened, even the lactation person who was on staff. i hadnt even left the hospital with her yet and i knew she wasnt latching right. then she was clicking. it took be until the 6 week to get her referred to ENT and they did clip the lip. argh. she still doesnt nurse right, but i have an awesome supply and letdown praise God. <br /><br />however, now shes barely starting solids (i dont mind - baby led solids and all) - but she doesnt seem to be taking them correctly. it just doesnt seem like she is getting food to the back of her mouth, she kinda holds it up in front. im SO MAD that no one listened to me, and that shes still dealing with this, and that my son likely is dealing with it too still at the age of 7. :( :( this isnt fair. all the tongue tie "professionals" arent anywhere near me. the pages ive visited looking for them show NONE in my entire state. that is not fair. why isnt this required education for doctors? i dont understand :(:(:(Ericka Autiegirl https://www.blogger.com/profile/12992151994463989419noreply@blogger.comtag:blogger.com,1999:blog-5670993098391563897.post-18685249191955161082013-05-16T09:44:27.606-04:002013-05-16T09:44:27.606-04:00I've had the same experiences. I am still nurs...I've had the same experiences. I am still nursing my 8 1/2mo with what I believe to be a posterior tongue tie and lip tie. He's getting interested in food now so I will suffer just a little longer (this is what I've said from day one) until he's eating on his own. I want to thank you SO MUCH for sharing. Even though I believe I'm at the end of this it was so nice to here your experience and these other responses. This does get overlooked and even if it is only a small TT/LT it is a huge deal. I know your page will help many moms. Thank you! <br /><br />I plan on waiting to see if he has any problems eating, talking, cavities, ect. If so I will check out your list of doctors again and have it taken care of.Anonymoushttps://www.blogger.com/profile/01634067510181846090noreply@blogger.comtag:blogger.com,1999:blog-5670993098391563897.post-69270337670880028482012-08-15T10:48:19.014-04:002012-08-15T10:48:19.014-04:00Oh! I'm so frustrated for you, and I wish I co...Oh! I'm so frustrated for you, and I wish I could fix it! I found a website with reader-recommended doctors in various states who perform frenotomies (clipping the tongue-tie): http://lowmilksupply.org/frenotomy.shtml. Whether or not they are familiar with posterior ties, I don't know. I know some people have emailed or called Dr. Kotlow in NY about their problems, and he's been willing/able to refer them to other ENT's or Dentists nearby. From what I understand, he is extremely friendly and willing to help. At the end of this presentation (http://www.kiddsteeth.com/nursingbookaugfc2011.pdf) he lists his email and phone number. <br /><br />If you find someone, print off Kotlow's and Coryllos' presentations (see my Tongue-Tie page), take pictures of your baby crying, and tell the person you go to to examine him laying down with his head toward the doctor (oh, and if you are brave enough, leave your research with him!).<br /><br />I hope this helps, and if you find someone, let me know! I would like to compile my own list of doctors, too! I'll be praying that you get the help you need and peace in making whatever decisions come your way!Christinehttps://www.blogger.com/profile/04492902431935577086noreply@blogger.comtag:blogger.com,1999:blog-5670993098391563897.post-64490294273513969792012-08-15T01:29:47.985-04:002012-08-15T01:29:47.985-04:00I'm so frustrated because we've been to SO...I'm so frustrated because we've been to SO many specialists, and no one can help. The ENT hadn't even heard of posterior tongue-ties. I wish I'd known to bring pictures and research, but it never occurred to me that a specialist might not have heard of something in his field! I've found a pediatric dentist who thinks he has one (she first suggested it to me), but isn't confident enough to clip it. A speech pathologist said she thought he fit the profile perfectly (but can't diagnose w/o being a doctor). None of the 3 LCs I've seen have known if it was or wasn't one. Our family doctor has no clue. I can't find any listings of docs or dentists familiar with the condition in our area (South Carolina)... any ideas?Eowyn's Heirhttps://www.blogger.com/profile/14717363754137835260noreply@blogger.comtag:blogger.com,1999:blog-5670993098391563897.post-73195883742138695032012-07-02T16:11:45.129-04:002012-07-02T16:11:45.129-04:00Cait,
I am so happy you were able to find this pos...Cait,<br />I am so happy you were able to find this post! I completely understand the frustration and envy when seeing others nurse so effortlessly. It SHOULD feel comfortable and pleasurable. Don't let the ENT's try to convince you to quit if it's really what you want to do. My son and I have an amazing, pain-free breastfeeding relationship now. Have you seen the links and research articles I've posted on my Tongue-Tie page? <br /><br />http://threegentlemenandalady.blogspot.com/p/tongue-tie-and-beastfeeding-links.html#.T_H8h5FCryo<br /><br />The ENT who finally clipped my son's tongue was a young doctor; he'd only been on his own for a handful of years, so was still willing to accept "new" information (vs being set in his ways). Bring research articles and pictures with you to your appointment. The more prepared you are, the less likely they will be to brush off your concerns. If you don't get what you feel your son needs from these doctors, consider seeing a pediatric dentist. Many dentists seem to be more knowledgeable about PTT than ENT's.<br /><br />I hope and pray you get the help you need and peace in making whatever decisions come your way.Christinehttps://www.blogger.com/profile/04492902431935577086noreply@blogger.comtag:blogger.com,1999:blog-5670993098391563897.post-19518527515583144862012-07-02T13:53:20.887-04:002012-07-02T13:53:20.887-04:00This is so inspiring. I've been bounced around...This is so inspiring. I've been bounced around by lactation consultants, doctors, and breastfeeding specialists. One says he's possibly tongue tied, another says no. I've ruled out acid reflux and oversupply on my own, really. I know he's tongue tied, specifically posterior. I was tongue tied and never clipped, but my mother suffered from multiple bouts of mastitis with me. I've had mastitis three times in his mere 6 weeks. We are both suffering. We have appointments with two pediatric ent's, but only because I begged. First one is this Friday. I am praying that he sees what we are going through and he is able to clip it. I am envious of friends I have who have that peaceful and pain free breastfeeding relationship. It's all I ever wanted since I've have my son. I really wish that professionals in the medical field knew more about this. It's only through my relentless research online and pestering of doctors that I am coming to this conclusion and trying to resolve it. Thank you so much for sharing this!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-5670993098391563897.post-10596769265871646912012-04-23T14:37:11.807-04:002012-04-23T14:37:11.807-04:00Christine, I am so proud of you! I always doubted ...Christine, I am so proud of you! I always doubted when others bottle fed because they said the "baby didnt want to breast-feed". I always secretly guessed that it didn't fit into their schedule because I had never had any problems. shame on me! You are an inspiration, and again I say I am so proud of you and your intelligence and tenacity!<br />Love you!<br />Aunt CindiAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-5670993098391563897.post-50532052627757473132012-04-23T13:55:05.047-04:002012-04-23T13:55:05.047-04:00Thank you so much for posting this. I have goosebu...Thank you so much for posting this. I have goosebumps and tears bc I know EXACTLY your pain here. Atticus is my first baby but like you with Lucas, I gave up BFing. Unlike you I was thankfully able to achieve relactation and after that FINALLY get his posterior tongue tie clipped after much drama and a very rude ENT at Riley we drove over 2 hours one way to get it clipped in Dayton, OH. Thank you for sharing this and I hope it helps other moms who can relate.Alexandranoreply@blogger.com